Abstract

COCA, Juan R.  and  ROCHE-CARCEL, Juan A.. Kairós and the Vulnerability of People Affected by Rare Diseases: A Semiotic and Hermeneutic Analysis. En-clav. pen [online]. 2022, vol.16, n.31, e494.  Epub Mar 21, 2022. ISSN 2594-1100.  https://doi.org/10.46530/ecdp.v0i31.494.

In this paper, a theoretical analysis of the vital conditioning factors that people affected by rare diseases and their families have is carried out. This research is structured from a semiotic and hermeneutic perspective in order to better understand their social reality. In it we have detected the inexistence of the Kairos and the empire of the chronos. This fact is the result of the structuring of the social system and the limitation of options for these people. Faced with this reality, the possibility of structuring a society where there is a kairological reduction and a promotion of fraternity, understood as a temporary alternative, is raised.

Keywords : social time; health; rare diseases; social theory.

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