<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>1870-879X</journal-id>
<journal-title><![CDATA[En-claves del pensamiento]]></journal-title>
<abbrev-journal-title><![CDATA[En-clav. pen]]></abbrev-journal-title>
<issn>1870-879X</issn>
<publisher>
<publisher-name><![CDATA[Instituto Tecnológico y de Estudios Superiores de Monterrey, División de Humanidades y Ciencias Sociales]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S1870-879X2022000100205</article-id>
<article-id pub-id-type="doi">10.46530/ecdp.v0i31.494</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[Kairós y vulnerabilidad de las personas afectadas por enfermedades raras: un análisis semiótico y hermenéutico]]></article-title>
<article-title xml:lang="en"><![CDATA[Kairós and the Vulnerability of People Affected by Rare Diseases: A Semiotic and Hermeneutic Analysis]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Coca]]></surname>
<given-names><![CDATA[Juan R.]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Roche-Cárcel]]></surname>
<given-names><![CDATA[Juan A.]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Universidad de Valladolid  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Spain</country>
</aff>
<aff id="Af2">
<institution><![CDATA[,Universidad de Alicante  ]]></institution>
<addr-line><![CDATA[ ]]></addr-line>
<country>Spain</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>06</month>
<year>2022</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>06</month>
<year>2022</year>
</pub-date>
<volume>16</volume>
<numero>31</numero>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://www.scielo.org.mx/scielo.php?script=sci_arttext&amp;pid=S1870-879X2022000100205&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://www.scielo.org.mx/scielo.php?script=sci_abstract&amp;pid=S1870-879X2022000100205&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://www.scielo.org.mx/scielo.php?script=sci_pdf&amp;pid=S1870-879X2022000100205&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[Resumen En este artículo se realiza un análisis teórico de los condicionantes vitales que tienen las personas afectadas por enfermedades raras y sus familias. Esta investigación se estructura desde una perspectiva semiótica y hermenéutica para poder comprender mejor su realidad social. En ella hemos detectado la inexistencia del Kairós y el imperio del chronos. Este hecho es fruto de la estructuración del sistema social y de la limitación de opciones para estas personas. Ante esta realidad, se plantea la posibilidad de estructurar una sociedad donde se produzca una reducción kairológica y un fomento de la fraternidad, entendida como alternativa temporal.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[Abstract In this paper, a theoretical analysis of the vital conditioning factors that people affected by rare diseases and their families have is carried out. This research is structured from a semiotic and hermeneutic perspective in order to better understand their social reality. In it we have detected the inexistence of the Kairos and the empire of the chronos. This fact is the result of the structuring of the social system and the limitation of options for these people. Faced with this reality, the possibility of structuring a society where there is a kairological reduction and a promotion of fraternity, understood as a temporary alternative, is raised.]]></p></abstract>
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<kwd lng="es"><![CDATA[salud]]></kwd>
<kwd lng="es"><![CDATA[enfermedades raras]]></kwd>
<kwd lng="es"><![CDATA[teoría social]]></kwd>
<kwd lng="en"><![CDATA[social time]]></kwd>
<kwd lng="en"><![CDATA[health]]></kwd>
<kwd lng="en"><![CDATA[rare diseases]]></kwd>
<kwd lng="en"><![CDATA[social theory]]></kwd>
</kwd-group>
</article-meta>
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