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Revista del Instituto Nacional de Enfermedades Respiratorias

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Abstract

ISLAS SALAS, Noemí Lucero; RAMOS DEL RIO, Bertha; AGUILAR ESTRADA, Ma. Guadalupe  and  GARCIA GUILLEN, Ma. de Lourdes. Psychosocial profile of the informal primary caretaker of patients with COPD. Rev. Inst. Nal. Enf. Resp. Mex. [online]. 2006, vol.19, n.4, pp. 266-271. ISSN 0187-7585.

Introduction: Chronic obstructive pulmonary disease (COPD) affects patient and patient's family quality of life. Nearly 75% of patients with COPD are unable to perform their usual daily chores without the help of a caretaker. Objective: To describe the psychosocial profile of the informal primary caretaker (IPC) of patients with COPD in our socioeconomic environment. Method: Prospective, descriptive, horizontal study during July and August 2006; I PCs arriving to the outpatient clinic with their patients with COPD were submitted to The Health's IPC Questionary. Results: Forty six IPCs were interviewed; 76.1% were female, 66.7% were married, 32.6% were patients' wives, 32.6% daughters, 67.4% were illiterate, 52.2% were housewives and 84.8% shared the home with the patient, 50% had not seen a physician during the previous six months. Only 37% reported light and 23.9% moderate stress during their caretaking chores; 63% reported sadness and/or depression, 52.2% anger and irritability, 50% fear and anxiety, 58.7% rest and sleep difficulties, 73.3% muscular tension and 45.7% fatigue. Conclusions: The psychosocial profile of the IPC in our study is consistent with that of reports from México and other countries. The importance of the IPC as a caretaker of patients with COPD is underscored, as well as the need to develop protocols to train and help the needs of the IPC.

Keywords : COPD; informal primary caretaker; psychosocial profile; stress.

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