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Acta pediátrica de México

versión On-line ISSN 2395-8235versión impresa ISSN 0186-2391

Resumen

LOPERA-ESCOBAR, Alejandra  y  BASTIDAS-ACEVEDO, Myriam. Experiences of mothers of children with Down syndrome in medical care. Qualitative study with ethnographic techniques. Acta pediatr. Méx [online]. 2018, vol.39, n.2, pp.109-120. ISSN 2395-8235.  http://dx.doi.org/10.18233/apm39no2pp109-1201572.

INTRODUCTION:

The meanings of disability that are built in the interaction between the physician and the families of children with Down Syndrome (DS) influence childhood development and reflect the attitudes experienced by people with disabilities and their families in society, specifically In contexts such as medical care.

OBJECTIVE:

To describe the experiences of mothers of children with DS in the medical consultation of their children and its influence in the construction of the meaning of DS

MATERIAL AND METHOD:

Qualitative study with ethnographic techniques carried out in Medellin-Colombia in 2016; we interviewed 17 mothers of children with DS. Simultaneous analysis of the information and concomitant review of the literature were performed with the emergence of the data.

FINDINGS:

Mothers expressed dissatisfaction with their children's medical care; for the lack of recognition of the child with DS, for the denial of the right to health and the dehumanization of care.

CONCLUSIONS:

The dominant position of the professional was imposed on the mother, the rights and needs of the child with DS. Mothers questioned praxis and medical training; emerged the lack of recognition of the child with DS and his mother, the denial of the right to health and the dehumanization of medical care.

Palabras llave : medical care; Down syndrome; rights; disability.

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