SciELO - Scientific Electronic Library Online

vol.51 suppl.2Breast health global initiative (BHGI) planeamiento para el desarrollo de programas en América latinaAbogacía y cáncer de mama: el cambio en las percepciones índice de autoresíndice de materiabúsqueda de artículos
Home Pagelista alfabética de revistas  

Servicios Personalizados



Links relacionados

  • No hay artículos similaresSimilares en SciELO


Salud Pública de México

versión impresa ISSN 0036-3634


DURSTINE, Alessandra  y  LEITMAN, Elizabeth. Building a Latin American cancer patient advocacy movement: Latin American cancer NGO regional overview. Salud pública Méx [online]. 2009, vol.51, suppl.2, pp. s316-s322. ISSN 0036-3634.

The objective of the this paper is to assess and identify the key strengths and weaknesses for cancer control NGOs in Latin America, with the goal to make recommendations about how to improve thev impact of the patient advocacy movement as it pertains to cancer. The methods included literature review, expert interviews and site visits to Latin American cancer hospitals and NGOs. The overall findings conclude that NGOs currently do not take a leadership role in cancer control in Latin America. The lack of a survivorship movement, faulty patient information services and failure of the governments to include NGOs in policy creation are identified as areas for further project work and collaboration. The stigma of cancer still remains and a burgeoning patient movement can be created to help destigmatize and debunk the myths that surround cancer.

Palabras llave : patient advocacy; cancer; NGO; policy making; survivorship.

        · resumen en Español     · texto en Inglés     · Inglés ( pdf )